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criduchat.asn.au
Information on this rare genetic disorder, including its characteristics and genetic basis.
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portlandtaiko.org
Multiethnic community group, ensemble, and youth group in Oregon. Schedule of workshops and classes, performance and tour schedules, photographs, and reviews.
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criduchat.it
Presenta la storia dell'organizzazione, le sue finalità, informa sulla malattia, elenca le pubblicazioni e gli eventi per la raccolta di fondi. Dispone di fotografie e giornalino.
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DECIPHER helps the clinical community share and compare human genome variants and phenotypes in a database of tens of thousands of patients worldwide
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fondationlejeune.org
La fondation présente ses missions, l'état de la recherche, des questions réponses et des définitions des maladie.
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The Cri Du Chat Research Foundation is dedicated to fostering research that will improve the quality of life of those affected by Cri Du Chat Syndrome.
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Regroupement pour la Trisomie 21 - Viser l'inclusion
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The best speakers and educators in the photography business are at Mystic Seminars in Connecticut.
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The Jerome Lejeune Foundation USA centers its activities on Research, Care, and Advocacy for people with Down Syndrome.
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chromodisorder.org
Non-profit patient advocacy organization. Support and information provided for those affected by rare chromosome disorder.
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Orchard Pest and Disease Management Conference - Annual Meeting the 2nd week of January in Portland, Oregon
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Non-profit organization run by parents. FRAXA accelerates progress toward effective treatments and ultimately a cure for Fragile X, by directly funding the most promising research.
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L'association se mobilise pour faire respecter les droits des personnes porteuses de la maladie. Toulouse.
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fundacionlejeune.es
Home - Jérôme Lejeune
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Support for families with a member with Angelman Syndrome in the UK. Newsletters and links to other AS sites.
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Features information about the disease, its treatment, and inheritance.
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Information on this disease, medical aspects, education, references, contacts and what's new in Australia
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La SFMPP évalue le bénéfice médical et les bonnes pratiques de tests génétiques prédictifs pour améliorer le dépistage, la prévention et les traitements.
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The Iona Institute
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prader-willi.fr
Elle a été créée pour informer les familles et les professionnels sur le syndrome, contribuer à améliorer la vie des personnes atteintes et encourager la recherche.
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Home - José Carlos Bermejo
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Plateforme web francophone dédiée au trouble du spectre de l'autisme (TSA), regroupant de l'information, des outils et du matériel adaptée gratuit ayant pour mission d'apporter une aide de première ligne aux parents touchés par l'autisme